Welcome to Tomika Galó's page

It is never the child’s fault if he is sick. It’s not my son’s, Tomika’s fault either that he was born with this terrible disease, SMA 1. I was thinking a lot, why fate would put this burden on us. I thought hundreds of possible explanations…. but none of them will change the fact: only the world’s most expensive medicine can help my son.

I always wanted to be a responsible mom, one who knows and understands that her child is a gift and her only job is to nurture, tend and teach him to be a sure-footed, balanced, happy adult.

As life would have it, my responsibility is greater than usual. Although I would leave no stone unturned and would go at any length without any fear or questions, I had to admit I cannot solve this on my own.

I need help. Your help. My little one is merely 5 kg away from the final weight threshold of the world’s most expensive medicine and we are quickly running out of time.

My son, Tomika, is a 5 years old, chatty, bubbly little boy.

He was diagnosed with SMA 1 4,5 years ago and we are fighting for his recovery ever since.

We have been through numerous treatments and he improved a lot in many areas except his swallowing. Due to his inability to swallow properly, every meal is life threatening, every meal can be the last and this situation deteriorates continuously.

The therapies currently available to us will not help in this area; at this stage only the Zolgensma gene therapy could help us.

Although with the Hungarian state’s help Zolgensma is now freely available, but only for children under 13,5 kg and 3 year. Tomika is now 16 kg and 5 years old. Fortunately, a lot of countries follows the 21 kg weight limit set by the European Medicines Agency without any age restriction. This means that there is still hope, but we have to get funding ourselves. HUF 760 million – 2.100.000 EUR. Hard to even imagine…

We have started a campaign in the beginning of December and a lot of people helped already but we are still far away from our goal. This is a huge amount but if we could find 300,000 people who can help with just HUF 2,000 (or EUR 5,4) we would achieve our goal.

Please, help us if you can. Even sharing our page may help if it reaches more people. My son has no other chance; he has no other option. I believe we can do this together. The power of the community and love already helped 4 little children, let my little son be the 5th one please. This cannot be the end of his fight.

We need your help please!